A woman walks through a hospital corridor in Shanghai, Jan. 4, 2016. Yang Qingyue/VCG

Shedding Light on China’s Patients With Rare Diseases

BEIJING — Twenty-six-year-old Yang Maomao — a pseudonym — may be young, but when she took to the stage at a recent forum to exhort some of the country’s leading doctors and policymakers to update an official list of rare diseases, she spoke with a confidence that belied her youth.

Yang, who works for the Illness Challenge Foundation (ICF), a Beijing-based advocacy group…